Other paediatric projects and events

Date:
07-SEP-2017
Title:
Collaboration of PRINTO with the ERN RITA
Location:
Description:
European Reference Networks (ERN) are involving virtual networks healthcare providers across Europe supported by the European Commission. To review a patient’s diagnosis and treatment, ERN coordinators will convene a “virtual” advisory board of medical specialists across different disciplines, using a dedicated IT platform and telemedicine tools. This way it is the medical knowledge and expertise that travel, who have the rather than the patients’ comfort of staying in their supportive home environments.
 
RITA (ERN on immunodeficiency, autoinflammatory and autoimmune diseases) is one of the 24 European Reference Networks approved by the ERN Board of Member States.
 
RITA brings together the leading European centres with expertise in diagnosis and treatment of rare immunological disorders. These constitute potentially life-threatening conditions requiring multidisciplinary care using complex diagnostic evaluation and highly specialised therapies. The network divides these conditions into three sub-themes: primary immunodeficiency (PID), autoimmune disorders and autoinflammatory disorders. In addition, there is a sub-theme of paediatric rheumatology which straddles the autoimmune and autoinflammatory sub-themes.
  
The foundation of RITA has been developed to bring together the resources and hard work of successful, already existing, highly specialised international scientific societies, registries and websites:
 
· ESID - European Society for Immune Deficiencies (inc ESID registry)
· PRES - Paediatric Rheumatology European Society (inc Eurofever and Pharmachild registries)
· ISSAID – International Society for Auto-Inflammatory Diseases
· PRINTO - Paediatric Rheumatology International Trials Organisation
· EUVAS – European Vasculitis Society
· BEHCET International
 
The RITA network is currently made up of 24 centres across Europe from 10 different countries:  
Belgium
Czech Republic
France
Germany
Italy
Slovenia
Spain
Sweden
The Netherlands
United Kingdom
  
Built upon existing networks across Europe, (as PRINTO), we have already begun to develop links with affiliated centres in other countries.
For more information about the ERNs and the EU health strategy, please visit http://ec.europa.eu/health/ern